Evidence-Based Patient Resources

Articles & Guides

In-depth articles about dysautonomia, POTS, MCAS, EDS, ME/CFS, and related conditions — written for patients and caregivers.

small-fiber-neuropathy

Newly Diagnosed with Small Fiber Neuropathy — A Patient Guide

Newly diagnosed with Small Fiber Neuropathy? This patient guide covers SFN symptoms, diagnosis via skin biopsy, autoimmune vs. idiopathic causes, treatments, and its link to POTS and MCAS.

6 min read2
me-cfs

Newly Diagnosed with ME/CFS — Navigating the First Year

A compassionate guide for those newly diagnosed with ME/CFS. Learn to navigate the first year, manage PEM, practice pacing, and build a supportive care team.

7 min read2
fibromyalgia

Newly Diagnosed with Fibromyalgia: Moving Forward with Hope and Understanding

Newly diagnosed with fibromyalgia? This patient-focused guide covers understanding central sensitization, managing symptoms with sleep, exercise, stress, medications, and building support.

9 min read2
gastroparesis

Newly Diagnosed with Gastroparesis — Getting Started

Newly diagnosed with gastroparesis? Understand what it means for your digestion, learn about immediate dietary changes, medications, finding a specialist, and managing nutrition.

8 min read3
eds

Newly Diagnosed with EDS — Your First 90 Days

Newly diagnosed with Ehlers-Danlos Syndrome (EDS)? This guide covers your first 90 days, including understanding hEDS, building your care team, protecting joints, and screening for POTS/MCAS.

5 min read2
pots

Newly Diagnosed with POTS: A Complete First Steps Guide

Newly diagnosed with POTS? This comprehensive guide covers emotional realities, what POTS is, 5 crucial first steps, common misconceptions, and what to expect in year one.

7 min read3
dysautonomia

Newly Diagnosed with Dysautonomia: Understanding Your Nervous System

Newly diagnosed with dysautonomia? Understand your autonomic nervous system, common types like POTS, OH, NCS, and first-line treatments. Learn how to explain it to family and practical steps to take.

6 min read3
me-cfs

Graded Exercise Therapy vs. Pacing for ME/CFS: Why the Guidelines Changed

Understand the ME/CFS GET controversy. Learn why pacing and the Energy Envelope method are now preferred, evidence-based strategies for managing ME/CFS, and how to implement them.

8 min read2
long-covid

Newly Diagnosed with Long COVID — What Patients Need to Know

Newly diagnosed with Long COVID? Understand diagnosis validation, symptom fluctuations, evidence-based interventions, pacing, and how to find a specialized clinic.

7 min read3
gastroparesis

Dietary Approaches for Gastroparesis: Finding What Works for Your Stomach

Explore dietary approaches for gastroparesis: liquid diet, soft diet, small frequent meals, and elemental formula. Learn when to use each, pros, cons, and how to transition for better symptom management.

9 min read3
mcas

Newly Diagnosed with MCAS: Your First Steps Towards Understanding and Managing

Newly diagnosed with MCAS? This patient-focused guide covers understanding MCAS, building a safe food list, starting antihistamines, trigger identification, and finding the right doctor.

8 min read3
hashimotos

Newly Diagnosed with Hashimoto's and Dysautonomia — Managing Both

Newly diagnosed with Hashimoto's and dysautonomia? Learn how these conditions interact, why thyroid optimization isn't enough, the POTS connection, and build a comprehensive treatment plan.

10 min read2
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